This is a story, a sad one, about a little girl named Kylie. Her family lives in a town near ours. The story was on Huffington Post. I first heard got word of this little girl about a year ago. There were pink ribbons tied all over Alpine, CA to support little Kylie's battle with Neuroblastoma. There's a GoFundMe account to raise money for the ENORMOUS medical bills. I got this bracelet to support Kylie and her family. What follows my picture, is the story from HuffPo.
Almost a year ago today I received a Facebook message from a close friend requesting that I pray for a 19 month old baby girl named Kylie Elizabeth Rowand. Kylie had just been diagnosed with stage 4 high risk, mycn amplified, Neuroblastoma. In the close of the message was a direct link to the Prayers For Kylie Facebook page.
The featured picture of Kylie displayed a beautiful little girl with a celestial smile looking up at her mother, Bree, who stood as a pillar of strength with quintessential beauty and grace. Bree would come to be the woman who helped remind me of the true meaning of faith. Over the next 373 days, along with thousands of other followers across the globe, we witnessed the type of love you only hear about in church or see played out in the movies. A mother fighting for her child cloaked in unwavering faith, if there were moments of Bree's weakness I for one never saw them.
Daily updates to the "PFK" page allowed followers a glimpse at the journey this young family was embarking upon. On good days we as a growing community, relished in videos of Kylie playing "stinky toes" with Bree or calling out to her daddy Luke, "Da Da, Da Da" her little voice echoing in the air. On not so good days there would be post requesting continued prayer. Those days would be heart stopping as they included; the spreading of the cancer, the development of VIP (Vasoactive Intestinal Peptide) Kylie being the first child to have VIP in stage 4 Neuroblastoma, A fungal infection, surgery on her skull do to the spreading of the disease and 9 rounds of chemo. Through it all, it was Bree who encouraged us, the "Prayers For Kylie," community which had now grown to over 77,000 members. Through her faith I believed. As a mother of 3, I know somewhere in me is this divine strength this relentless fight but my logic could not comprehend her indefatigable trust in the word of God.
also there is a line of nail polishes. I order purple and pink (pink was one of Kylies favorite colors)
If you find it in your heart to donate that is awesome. If you can't do it (i do realize times are tough), but maybe forward this blog post to someone.
RIP Kylie. Heaven's Newest Angel.